Fanconi Anemia is a very rare bone marrow disorder. There is no cure and it is almost always fatal while the child is pre teen. There are cases of children living into their 20's and 30's so there is hope.
Tyler has this awful disease. Tyler is my 5 year old grandson. He had no clotting factors in his blood so he can easily die from internal bleeding from a simple bruise. Tyler will need to have a bone marrow transplant within the next year. His blood levels are very low but they are stable right now so we are hoping they stay as they are or get better. The longer he can go without the transplant the better the chance it will be successful. If you are interested in keeping up with his progress you can go to his CaringBridge site http://www.caringbridge.org/visit/tylerstoolbox. You can read all about this dreaded disease by going here http://www.fanconi.org/
We need your help to fund further research to find a cure. In honor of Fanconi Anemia Awareness Week I have made a scrap kit. A small donation of $5.00 or more to either The Tyler Wade Fund or to the Fanconi Anemia Research Fund will get you this great kit.
I fill each scrapkit request by hand so please wait 24 hours before you contact me. Thank You!!
Click below to make a $5.00 gift to the Tyler Wade Fund!!
Click below to make a $5.00 gift to the Fanconi Anemia Research Fund!!